ERA-NET: Rare Diseases
Disciplines
Health Sciences (20%); Clinical Medicine (15%); Arts (55%); Sociology (10%)
Keywords
Childhood Stroke,
Built Environment,
Patient Experience,
Architecture,
Healthcare,
Health Economics
Abstract
The international project "BUILD CARE" examines the role of the built environment in the everyday life of children
suffering from stroke. Spatial situations and difficulties in the private and public environment of the children are
examined using various architectural and social science methods. As part of this project, Prof. Bartha-Doering`s
working group is specifically interested in the visuoperceptual functions of children and adolescents after a stroke.
Visuoperceptual functions encompass many visuoperceptive skills, including visual discrimination and matching,
object recognition, visuospatial perception, topographical orientation and wayfinding, motion perception, and
visual memory. Deficits in these abilities can affect the children`s everyday life, their mobility and their first steps
towards independence. Detailed knowledge about visuoperceptive limitations and special needs of this patient
group can flow into the future design of the built environment of private and public buildings (e.g. rehabilitation
centers, clinics). Therefore, design recommendations are being developed together with the architects and social
scientists of the international BUILD CARE project based on the findings of this study. These are shared with
architects, patient organizations, and healthcare facilities in an online knowledge platform. The aim of the project is
to improve the everyday life of children and families affected by a childhood stroke.